Project overview
The study aims to understand how and why live-in care packages are arranged and sustained, when dementia is the primary support need, and to characterise the nature of this market in England (e.g., number, size, and scope of providers).
The objectives are to:
a) synthesise and examine current evidence on live-in care, paying particular attention to data on how and whether this care model supports AiP for persons with dementia.
b) scope health and social care commissioning of live-in care; to evaluate and characterise different types of live-in care packages, when dementia is the primary support need, paying particular attention to criterion used, fees, and resources required, such as space within the home.
c) examine the process of arranging a live-in care package when dementia is the primary support need, from multiple perspectives – paying particular attention to the involvement of persons with dementia in the process, identifying principles of good practice, and areas for improvement.
d) analyse experiences of receiving live-in care using the concept of AiP and compare experiences across diverse contexts, households, and communities.
e) share learning through an ongoing process of knowledge exchange with an engaged community of stakeholders, including the co-design of an evidence-based resource with Admiral Nurses, social workers, and people living with dementia.
1.2. Summary of methods
For objective (a) will map the research and policy evidence on live-in care, with a focus on people living with dementia. For objective (b) we will conduct a two-pronged survey using the software Qualtrics. The first prong will be aimed at commissioners of integrated care boards; the second prong, care providers listed as offering live-in care. For objectives (c) and (d) we will conduct evaluative case studies with ten households employing a live-in carer when dementia is the primary support need. For objective (e) we will engage with relevant parties, including commissioners, government ministers, service providers, and families living with dementia, in a series of workshops.
1.3. Main benefits of the research
The proposed work will clarify how many live-in care packages are arranged and enhance understanding of what it is like to have a live-in carer when dementia is the primary support need. We will provide evidence that decision-makers, including commissioners and people living with dementia, can use when planning and monitoring long-term care. Finally, we will test out and refine the concept of AiP for a dementia context.
The objectives are to:
a) synthesise and examine current evidence on live-in care, paying particular attention to data on how and whether this care model supports AiP for persons with dementia.
b) scope health and social care commissioning of live-in care; to evaluate and characterise different types of live-in care packages, when dementia is the primary support need, paying particular attention to criterion used, fees, and resources required, such as space within the home.
c) examine the process of arranging a live-in care package when dementia is the primary support need, from multiple perspectives – paying particular attention to the involvement of persons with dementia in the process, identifying principles of good practice, and areas for improvement.
d) analyse experiences of receiving live-in care using the concept of AiP and compare experiences across diverse contexts, households, and communities.
e) share learning through an ongoing process of knowledge exchange with an engaged community of stakeholders, including the co-design of an evidence-based resource with Admiral Nurses, social workers, and people living with dementia.
1.2. Summary of methods
For objective (a) will map the research and policy evidence on live-in care, with a focus on people living with dementia. For objective (b) we will conduct a two-pronged survey using the software Qualtrics. The first prong will be aimed at commissioners of integrated care boards; the second prong, care providers listed as offering live-in care. For objectives (c) and (d) we will conduct evaluative case studies with ten households employing a live-in carer when dementia is the primary support need. For objective (e) we will engage with relevant parties, including commissioners, government ministers, service providers, and families living with dementia, in a series of workshops.
1.3. Main benefits of the research
The proposed work will clarify how many live-in care packages are arranged and enhance understanding of what it is like to have a live-in carer when dementia is the primary support need. We will provide evidence that decision-makers, including commissioners and people living with dementia, can use when planning and monitoring long-term care. Finally, we will test out and refine the concept of AiP for a dementia context.